The brilliant J is hardworking, with plenty
of potential in her job. She is also said to be charming, gentle and a darling
to her friends and family.
But J
is also a chronic pain sufferer. That separates her from many of us. Despite
the fact that she is highly functional - she even outperforms me at times - she
is in pain most of the time.
This is
the main reason why J came forward. She wanted to be "normal".
I do
not know what "normal" really means. So my definition of her request
simply means that J wants to get better and feel better.
That is
a worthy cause. It is also a difficult one.
Through
my lens
J
suffers from chronic migraine and chronic abdominal pain. She has had these for
as long she can remember, she says.
Despite
that, life goes on for her, like it does for many of us. She has settled down,
brings up her family, goes to work, maintains social contact and takes part in
an active lifestyle. She has endured the pain for so long that it has become a
part of her life.
But J
is also a very intelligent woman. She has sought help from many health
professionals. She takes her medications and puts up with the side effects.
She
listens to peer advice and occasionally calls me to ask for my professional
opinion. She has also tried alternative medicine.
She
meditates and has tried acupuncture, massage and aromatherapy. All this means
she will never stop trying.
What
pain does
Pain is
real. The only reliable measure of pain and its intensity is the patient's
report. As a health professional, I need to acknowledge that first.
There
is a medical definition for chronic pain. There are advantages in classifying
pain. It gives doctors invaluable information on the origin of the pain.
It
guides us towards a proper treatment plan. However, it is equally important to
understand that pain is also an experience. We tend to remember our own most
excruciating pain experience, so much so that we hope that we won't have to go
through the experience again. Pain can also become part of our emotional
memory, hence J's wanting to "feel" better.
Her
pain is debilitating. When she has her migraine attack or abdominal pain, she
simply becomes "deficient".
Pain
for her also means missing work hours, poor productivity level in general, reduced
quality time with loved ones and the psychological burden that follows suit.
I have
yet to meet a chronic pain sufferer who hasn't experienced anxiety and
depression. What I have demonstrated here is that pain intrudes with many
aspects of the patient's perceived quality of life and how effectively it can
change it.
Treating
pain
Pain
management is a medical specialty. It does not exclusively belong to certain
sections of health care practitioners or professionals because whatever level
of medical profession you're at, one deals with patients who suffer pain on a
regular basis.
However,
the complexity of pain requires additional attention. For us in medical
rehabilitation, it becomes a concern when the pathology affects the person's
function and quality of life.
We
already know J has chronic pain. She is a sufferer of pain. It means, in a more
global concept, an overall negative feeling that impairs the sufferer's quality
of life. We also know she has tried different kinds of treatments, all of which
only gave her partial relief.
So the
aim of treatment here is not only to identify the pathology so that we can
medicate her with the hope of removing the pain altogether, but realistically,
to explore her coping ability in dealing with pain as she goes through her
daily functional life.
For
her, the pain assessment is a multi-dimensional approach as her pain seems to
affect almost every aspect of her life. This management plan would naturally
involve a multi-disciplinary team and would be time consuming.
J never
stops trying. Neither will we. J is coming to see us soon. She is also
realistic. But it is important for us to meet with her so that we will have a
common goal and mutual aim in managing the pain.
After
having coffee with J earlier, I am now at my desk, reflecting on the issue and
formulating a plan even as a sigh escapes my lips.
Having
friends seated nearby in our small working space, one of them who knows the
meaning of a frown on my face and my long sighs, turns to me and says: "My
dear, pain is inevitable. Suffering is optional you know."
Wise
words indeed.
Mizi
Hamzah
New
Straits Times
No comments:
Post a Comment